It happened with my dear mother-in-law. The scourge of Alzheimers. Scroll back to the weekend Journal for a revolutionary column by Liz Wessel.
Despite knowing the reason, the phenomena feels baffling: The person looks the same. But dementia has transformed them. An element of their being is different & requires different approaches.
"When is dinner?" Five minutes later, same question. Endlessly.
But why do so many become impatient & shout angrily, "I already answered that!"? Because no one offered the alternative described here.
It is exhausting to care for patients with dementia. Agonizing loneliness can ensue.
Ministers encourage endurance. Poets offer aid, as did Emily Dickinson's under-appreciated friend, Anne Reeve Aldrich* (left): "A life of patient suffering, such as I am sure yours must be, dear Miss Dickinson is a better poem in itself than we can any of us write,..."
Good news! There are terrific practical ALTERNATIVES.
In Liz's spectacular column she describes caring for her Alzheimers-afflicted friend, a former caregiver herself. I call her process, "Healing Distraction."
"After a while I find myself at a loss for words." Liz writes, "So, I close my eyes and...hum lullabies from my childhood, Christmas carols, hymns. Gradually she begins to calm." Sometimes, her friend sings too.
Her second strategy: to discuss patients the friend cared for: "A switch is flipped and over the next hour she talks about her nursing career, little fragments of recollections, hazy but still there. All is calm."
Aldrich wrote further, "...I believe it is only through the gates of suffering...that we can pass into that tender sympathy with the griefs of all..." Liz is a healer because she has passed through those gates & learned.
Her treatments go beyond raw patience to differentiate curing & healing. She "heals" suffering in that moment! Anxiety yields to Calm.
THIS is Radical Loving Caretm (RLC). Imagine how healing this is for both caregiver & patient.
Since RLC always goes beyond so does Liz: A note sits near her friend's bed: "Sing Amazing Grace when she becomes anxious."
The song title describes what happens by practicing Liz's advice: amazing grace settles in. "All is calm."
-Erie Chapman
You are invited to support the Journal via https://www.eriechapmanfoundation.net . Let me know if you contribute so I can thank you directly!:-)
*Both quote & picture of Aldrich (1866-1892) found in Maria Popova's life changing weblog, The Marginalian. (invite you to follow**) Aldrich wrote self-responsibility before her death at 26:
I made the cross myself, whose weight
Was later laid on me.
This thought adds anguish as I toil
Up life’s steep Calvary.
**The Marginalian – Marginalia on our search for meaning. https://www.themarginalian.org